Notes from my talk at Bay Area Autism and AD/HD conference 11/13/11

Today was the first time I’d spoken about Connor’s recovery from autism in an real, public way. I don’t hide it, but sometimes I’ve downplayed it.  But today I stepped up and told his story. I even had a Power Point presentation and photos. So, for those of you who stayed to the bitter end of the conference, thanks for listening! It was a much more emotional experience for me than I’d expected and choked up several times. (It was those damn photos of him as a happy smiley baby that completely undid me!)

I wish I’d been able to arrange babysitting for the entire weekend so I could have gone both Saturday and Sunday. I managed to hit 2 presentations just before mine and came away with 15+ pages of notes. I’m most interested in following up on sublingual immunotherapy (SLIT), especially for food allergies, and Cerebral Folate Deficiency (CFD).

I mentioned a few things in my talk without giving a resource and there were some questions afterwards that also needed some sort of follow-up. Hopefully parents jotted down this URL and find me here.

Places to start:

I had a couple of completely panicked new-to-biomed moms and one incredibly determined grandmother (I’m glad I’m not her daughter-in-law) ask for some specifics. Here are a few:

Books:
(I’m trying to figure out how to insert the Amazon.com widget. Be patient. I was an English major, not a computer science major)

Healing and Preventing Autism: A Complete Guide by Jenny McCarthy and Dr. Jerry Kartzinel
Very good overview of biomedical interventions. Whatever you think about Jenny McCarthy, she certainly shone the light of the media on biomedical treatments. She teams up with Dr Jerry Kartzinel, a very experienced Defeat Autism Now doctor and “interviews” him for the content of the book.

Changing the Course of Autism: A Scientific Approach for Parents and Physicians by Bryan Jepson, Katie Wright and Jane Johnson. This is the book that has all the research articles you could ever want to wave in front of some disbelieving pediatrician or skeptical family member.

Healing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies: The Groundbreaking Program for the 4-A Disorders by Kenneth Bock. I really like this book because it expands the view beyond autism to include other neuro-immune issues. It’s all connected, people! Dr Bock is another very experienced DAN doctor.

The Autism Book: What Every Parent Needs to Know About Early Detection, Treatment, Recovery, and Prevention (Sears Parenting Library) by Robert Sears. This looks like a gentle but comprehensive introduction to biomedical treatments, including diet, antifungals, detox.

The Kid-Friendly ADHD & Autism Cookbook, Updated and Revised: The Ultimate Guide to the Gluten-Free, Casein-Free Diet by Pamela Compart

The Autism & ADHD Diet: A Step-by-Step Guide to Hope and Healing by Living Gluten Free and Casein Free (GFCF) and Other Interventions by Barrie Silberberg

Special Diets for Special Kids, Volumes 1 and 2 Combined: Over 200 REVISED and NEW gluten-free casein-free recipes, plus research on the positive … ADHD, allergies, celiac disease, and more! by Lisa Lewis Ph.D.

Cooking for Isaiah: Gluten-Free & Dairy-Free Recipes for Easy Delicious Meals by Silvana Nardone (I admit I don’t have this cookbook, but I want it!!)

Websites:

www.TACAnow.com

www.Autism.com

www.Autismone.com

There’s enough information on any of these three to keep you up late reading for weeks.

Also mentioned, but either me or Diane Hunter, who preceeded me:

Slone Chiropractic for Brain Balance
Floortime
RDI
Transforming the Difficult Child: The Nurtured Heart Approach by Howard Glasser

About Jill R.

Mom, mostly tired, to 3 boys, mostly wired. Pretty much obsessed with healing foods for healthy brains. And "Scandal."
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3 Responses to Notes from my talk at Bay Area Autism and AD/HD conference 11/13/11

  1. Ojas says:

    It was a really good presentation that gave other parents both a useful example and a potential starting point.

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